Featured site: Malaysian Rare Disorders Society
The Malaysian Rare Disorders Society has recently come to our attention as an organisation which we have not yet linked with the MMR. It is a “voluntary organization set-up to represent and look out for the welfare of individuals including their families that are affected by rare disorders”
What are rare disorders might you ask? This slide presentation by Prof Thong is instructive:
[gview file=”http://www.mrds.org.my/2008%20Rare%20Disorders%20MRDS.pdf”]
We have linked the MRDS website in the MMR’s Public Societies Page. We plan to merge the Societies page with the Support groups page as many of these have overlapping functions so watch out for a revamped section in the near future.
Malaysian physician, haematologist, blogger, web and tech enthusiast